We are governed by a board of trustees, who are ultimately responsible for the management and conduct of the charity. Our trustees set our strategic direction, enabling us to work towards our vision.
Our constitution requires that 75% of our trustees and members are disabled people or carers. This is because we believe that our work should be led and influenced by people with lived experience of disability.
For further information about our Trustee roles please read our Be a Trustee Information Pack.
If you are interested in becoming a trustee please email email@example.com for an application form or phone us on 01903 219482.
Meet our trustees
Valerie Kiln-Barfoot - Chair
Read more about Valerie Kiln-Barfoot - Chair
“I am a young disabled woman living locally. I am a direct payments user and use the services of Independent Lives. Professionally, I have trained as a nurse and now work as a nurse researcher in both West Sussex and Surrey.
I am also a trustee of a national charity related to my condition and have experience as a family support officer for Great Ormond Street Hospital. This has given me knowledge and understanding of both social and health care processes.
As a trustee I work to bring a balanced insight of the professional and personal aspects of being a modern, independent disabled person.”
Malcolm Dennett - Vice Chair
Read more about Malcolm Dennett - Vice Chair
“I am an accountant with a long career working in both the public and private sectors. Since moving to Worthing from Hertfordshire in 2005 I have been involved in tackling the financial challenges faced by the NHS, both in London and locally.
I bring previous trustee experience having been the Honorary Treasurer of a local Mencap Society in Hertfordshire for over 30 years and a trustee for UK Skills and Chair of its Audit Committee. Now I have time to spare I wish to make a contribution to my local community.
As a family carer for a grown up daughter who is facing the challenges of living independently in the community, I feel I am able to bring understanding and empathy as well as professional experience to my role as a trustee.”
Irvine Caplan - Treasurer
Read more about Irvine Caplan - Treasurer
“I am a professional economist and treasurer by training, with wide ranging experience in finance and a long career working for governmental, public and private sector organisations. My direct experience of working with disabled people was with Remploy, where, as Company Economist I looked at supporting the provision of meaningful work, cost effectively. I also work on a voluntary basis, for two other local charities. As a Trustee Treasurer for AMEND (Association for Multiple Endocrine Neoplasia Disorders) and also as Chair of the National Cruse Bereavement Care (East Sussex Area).
My aim as a trustee at Independent Lives is to use my professional experience to enhance the services and support provided by charity in order to support disabled people to live independently.”
Mandy Paine (MBE) - Trustee
Read more about Mandy Paine (MBE) - Trustee
“I have spent the past ten years campaigning for better user involvement in palliative care with Dying Matters and the National Council for Palliative Care (NCPC) and I have been a trustee of Independent Lives since 2011.
I am a member of NCPC’s People in Partnership Steering Group and the Chronic Respiratory Diseases Group, and I have worked intensively with them on the development of the Difficult Conversations booklet on Chronic Obstructive Pulmonary Disease (COPD). I am also a Dying Matters champion and have spoken widely at NCPC and Dying Matters events. I have also worked extensively with the Department of Health to produce guidance for professionals and have actively sought to raise the media profile of these campaigns.
I was delighted to be awarded the MBE in the Queen’s Birthday Honours this year, in recognition of my work with these organisations.”
Sue Lines - Trustee
Read more about Sue Lines - Trustee
“I took early retirement three years ago after having worked in London in the disability sector and for local government for over 21 years. From this I gained knowledge and experience of issues affecting disabled people as well as equalities work from the perspective of a local authority access officer.
As a disabled person myself I am strongly committed to equality for all. And that the voices of disabled people are heard and acknowledged by policy makers. I am also passionate about the rights of disabled people including the right to live independently with choice and control. I believe that the work of Independent Lives contributes significantly to achieving these aims and that as a trustee I can also support these objectives.”
David Hardman - Trustee
Read more about David Hardman - Trustee
“I have worked in sport sector for 14 years both in coaching & strategic management. I currently work at Tennis Foundation as Disability Tennis Development Manager where my main objective is to engage more disabled people to play, volunteer and coach tennis across Great Britain.
My skills are in event management, strategic planning and relationship building. I also have a degree in Sport & Exercise Science. I am a keen badminton player, gym goer and make time to travel the world.”
Simon Wilson - Trustee
Read more about Simon Wilson - Trustee
My name is Simon Wilson and even though I have Cerebral Palsy with no speech, I run my own disability consultancy called SimonsAble, providing a range of services. My particular interests are working towards achieving equality for people with disabilities, so that people both with and without disabilities have the same opportunities.
I will undertake my role with a critical mind and I will draw on my life experience to provide Independent Lives with a fresh perspective.