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Sep 25 2024

East Sussex County Council to host personal assistant events

Two free events – taking place in October – aimed at supporting personal assistants and Micro Providers in East Sussex have been announced. East Sussex County Council has organised two events in Eastbourne and Bexhill in October. These events have been designed to provide guidance, networking opportunities and support to personal assistants and Micro Providers
Illustration of two orange hands holding a purple book titled 'Stories of Independent Lives' against a light orange background

Sep 10 2024

Neeraj’s story

In our latest story of Independent Lives, we spoke to Neeraj. Neeraj lives in Southampton with his family and has been a PA since 2019. While working in America as a dentist, Neeraj met his wife, and had planned to live with her in America once they had married, but when he met her family,
Paralympics logo consisting of three curved shapes in red, blue, and green

Aug 27 2024

How the Paralympics have inspired and challenged

In her latest post, our comms volunteer Sarah explores the history of the Paralympics, the impact the games have had on societal issues towards disability and disabled people, and the challenges they still face. There is good news on the horizon for sports fans as the Paralympics begin on 28 August bringing another chance to
Simplified clipboard icon on blue background

Aug 14 2024

A new plan to tackle health and social care

In our latest blog article, our comms volunteer Sarah looks at the plan proposed by ADASS (Association of Directors of Adult Social Services) to address the current issues facing the UK’s health and social care system Now there is a new Government in power, many of us will be wondering what their plans are to
Stylised magnifying glass icon on pink background related to a Direct Payment study

Aug 13 2024

Take part in a study exploring Direct Payments in Black and Minority Ethnic communities

Jilesh Kunnumpurath, a PHD student from the University of Birmingham, is carrying out research on how effective Direct Payments are for individuals in Black and Minority Ethnic communities. Direct Payments have been in place for over twenty years, and in that time, they have become a cornerstone of personalised care. Giving thousands of disabled people
A man with a mohawk hairstyle and tattoos sits in a leather chair, holding an electric guitar

Aug 7 2024

Jay’s story

In our latest story of Independent Lives, we spoke to Jay. Jay is a 36-year-old man living in East Sussex with cystic fibrosis. Despite the challenges posed by his condition, Jay leads an active and engaging life, supported by his personal assistant, Dawn, through a Direct Payment facilitated by Independent Lives. Cystic fibrosis is a

Jul 19 2024

July is Disability Pride Month

It’s now July, which brings with it a celebration that many may not be aware of. July is Disability Pride Month, an event that began in America over 30 years ago and is celebrated in many other countries, including the UK. So how did it all start? The origins of Disability Pride Month Disability Pride
Close-up of a document with the word 'Policy' at the top. A green highlighter is shown marking the word 'policy' in a list that includes 'government' and other partially visible terms. This image represents the focus on policy analysis and consultation, particularly relevant to the discussion of the PIP reform green paper and proposed changes to the disability benefit.

Jul 10 2024

Disability benefits under review – make your voice heard

Do you claim Personal Independence Payment (PIP) or are you a carer for someone who does? Would you like to share your views on the government’s latest proposals to ‘modernise’ the benefit system? The latest health and disability green paper proposes significant changes to the disability benefit PIP. A green paper is a type of

Jul 9 2024

Stop overpaying for prescriptions – Get a PPC

People always ask me, ‘Well don’t you get your prescriptions free because of your impairment?’.  The answer is ‘no’. Unfortunately a lot of chronic health conditions do not meet the criteria for a medical exemption card as it is a surprisingly short list. So, it is important to know that there is another option. With
A woman with long dark hair sits on a couch, looking off to the side with a thoughtful expression. She's wearing a black top with buttons. Behind her is a light blue wall, and a yellow throw blanket is visible on the couch. A small plant in a wooden container can be seen in the background

Jul 1 2024

Independent Lives unveils groundbreaking research on cost-of-living impact on disabled people and carers

Independent Lives has today released a comprehensive report detailing the severe impact of the cost-of-living crisis on disabled people and carers in Sussex. The research, conducted over 12 months and funded by NHS Health Education England, reveals a community struggling to manage their most basic needs: Disabled people and carers forced to make difficult choices