Independent Lives is proud to join the campaign in support of social care reform. Together with a coalition of other disabled people's organisations, we've signed the statement to call on the Government to adhere to a set of basic rights in the reform of social care:

  • Disabled people should have the right to thrive, not just survive.
  • The role of care and support in today’s society must be to provide care, support and connections that enable people to live the life we choose within their community.
  • Social care must provide support to people to live, learn, work, participate and connect, on an equal basis with others.
  • Reform must be fully informed by the experiences, expectations and aspirations of disabled people who draw on it.

Making change happen

In any social care reform, and to make the change we want to see, there must be:

Nothing about us, without us

The Government should engage directly with the people who use social care, and with the organisations that are led by disabled people.

Long-term funding

People should receive the care and support needed to lead full lives. Social care must be put on the same footing as the NHS, with a long-term plan for sustainability, and based on the experiences of those who use services.

Reform of the law to give more power to disabled people and support inclusion

The law must be strengthened to guarantee disabled people the right to choose where they live and who they live with, to get the care and support they need to lead full lives, and to access community activities like everybody else.

Funding to meet needs and reduce waste

The reform must put maximum available resources into direct support, allowing people to control their support and have real choice and power. 

Understanding current and future needs

Local authorities should record the needs that they are currently unable to meet to provide the information which the Government needs to work towards bridging any gaps.

Review charges for social care

There needs to be a fair approach to charging for social care. The current system of means-tested benefits can be particularly unfair towards young disabled people with high support needs.

Enabling disabled people to innovative

Innovation is not possible without choice and control and therefore reform must promote a radical change in the approach, ensuring that restrictions are removed so that people are truly able to self-direct their support.


To add your voice to the campaign, click here to sign the statement in support of good social care reform