May is Ehlers-Danlos Awareness Month

For many people, the journey to a diagnosis of EDS is a long and challenging road. Poor awareness of the condition amongst medical professionals means that it can go undiagnosed for many years, with patients often being misdiagnosed with other conditions.

To raise awareness, EDS UK are asking those with Ehlers-Danlos syndromes and hypermobility spectrum disorders this May to highlight how long it takes to get a diagnosis.

Just take an image like the one above and share it on Twitter and Facebook with the hashtag #timetodiagnosis.

To find out more about Ehlers-Danlos, please click here.

It’s also Mental Health Awareness Week

Mental health problems can affect anyone, any day of the year but this week is a great time to have a chat with a friend, family member or colleague and have a think about your own wellbeing too.

This year’s theme is ‘body image – how we think and feel about our bodies’.

The Mental Health Foundation has produced a report on this, which you can read by clicking here.

For more broad mental health resources, please visit the Mind website by clicking here.


Disability product reviews

The Research Institute for Disabled Customers have created a new product review website where reviews are written for and by disabled people. There are several different sections on the website, including reviews for mobility products, technology, and products to help you while you’re out and about and at home.

To visit the website, please click here


West Sussex Epilepsy training

West Sussex County Council are offering free online Epilepsy training. This should be particularly helpful if you have the condition and require your care staff to be appropriately trained.

To find out more about the training, please click here.