Community Participatory Action Research: Findings

Use this page to find out about Independent Lives' research into the effects of the cost-of-living on disabled people and carers.

During 2023/24, Independent Lives surveyed and interviewed disabled people and carers to understand how the cost-of-living crisis has affected them. What we discovered was a community struggling to manage their most basic needs. 

As a result of our research, we have found that disabled people and carers have been forced into making dire choices between heating, eating and care. We also found how few options there were for people, often contributing to them feeling trapped. People also told us how they were surviving but not thriving and how they were suffering from the consequences of the cost-of-living crisis, often with devastating impact on their mental health.   

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Pressure points:

Experiences of the cost-of-living on disabled people and carers in Sussex.

Independent Lives report into the effect of the cost-of-living crisis paints a stark picture for disabled people and carers. You can download the full report below which includes direct quotes from those hardest hit by the crisis alongside suggestions for improvements.

If you would like to be sent a printed copy of our report then please send an email to  

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As part of our research process, we conducted eight face-to-face interviews with disabled people and carers across Sussex. From these interviews, we have created several short videos.

The first video examines the impact of the cost-of-living crisis on their lives more broadly, while the second video looks at its effect on the quality and care they receive from the NHS and how this has affected them.


As part of our research we carried out a survey of disabled people and carers. Many of the comments made in the survey can be found in the above research report. if you would like to view a full copy of all the comments made then you can download them below.

This work has been funded by the Workforce Training & Education Directorate, NHS England South East.

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